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  1. #1
    Chatterbox Miss Lilys Mumma's Avatar
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    Sustagen vs Milk Powder?

    Has anyone tried to substitute skim milk powder for sustagen?

    We have been told L needs to increase her weight by 1-2 kgs in the next 3 months (last 3 months she put on 100grams). They are hoping to increase her muscle rather than her fat stores so instead of a high fat diet they want me to increase her protein. As she refuses to eat any sort of meat in any form that is not easy.

    I have been using sustagen in the past but the dietician told me she recommends skim milk powder instead as it is higher in protein than sustagen and I have done a check myself and she is right.

    Has anyone else used skim milk instead of sustagen and did it give better results?

    TIA

    (3.5 years on we are still struggling with FTT)
    Cheers
    Miss Lilys Mumma

  2. #2
    Where is my medal! EmJay's Avatar
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    Re: Sustagen vs Milk Powder?

    Its not something I ever would have thought of..I must admit I don't really look at protein, more at fat. Interesting!

    Do you mind me asking why she needs to gain so much, so soon...that's a really big ask!?
    Mummy to Charlie (my ex prem now 6) and Lizzie (4)
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  3. #3
    It's official! I have no life! rhonda's Avatar
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    Re: Sustagen vs Milk Powder?

    I've never heard of using milk powder. We were plonked onto Pediasure.
    She'll do it in her own time. Rachel was born @ 24 + 2 weeks, 669gms


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  4. #4
    Proud Mum Jenny's Avatar
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    Re: Sustagen vs Milk Powder?

    I just picked up a Sustagen to try my boys on today. We were on Pediasure and polyjule but since that all stopped their weight gains have been poor.

    I agree with Mandii that is a massive weight gain they want, why so much?
    Mum of twins born at 24.4weeks.

  5. #5
    Where is my medal! Le Bec's Avatar
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    Re: Sustagen vs Milk Powder?

    Personally I'd be inclined to add formula to skim milk powder. Even look at toddler milk, it's generally high in calories and protein. We bought Erin "natural" flavoured protein powder from coles and mixed it in with her solids - it doesn't dissolve in drinks though.

    Like Mandii said 1 - 2kg's in three months is a hell of a lot to ask. It's been my experience that doctors and nutritionists have a very unrealistic expectation of what children can and will gain. Even tube fed (so she was getting the right number of calories) Erin only gained a max of 150g a week and as time passed she gained less and less.
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  6. #6
    I would like to thank... Sally's Avatar
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    Re: Sustagen vs Milk Powder?

    I agree that's a big ask!! If you don't mind me asking, how much does she weigh now?

    I hope you L gains some weight for you :hug:
    Brendan 30+1 in Feb 2007 and Tristan 34+3 in June 2009

  7. #7
    Posting Hussy Kai's Dad's Avatar
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    Re: Sustagen vs Milk Powder?

    I cant give an answer but I was given a lot of sustagen as a kid and I thrived. Actually I have over thrived.
    Thinking of you and I hope it all works out.
    Kai our 959g Giant- 'AFNF'

  8. #8
    I have a life ... honestly! Pixie's Avatar
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    Re: Sustagen vs Milk Powder?

    That's a huge ask, sounds really unrealistic to me. I think you're probably better off sticking to your high fat diet but add protein powder to her meals, like Bec suggested.

    Sometimes I wonder if medical professionals set us up to fail. Our paed wanted us to get an extra 300mL into Talia every day when she was 3 months corrected. Asking for such a huge gain with a toddler/preschooler is ridiculous. Even at her best Tali's lucky to gain 100-200g in a week, and you can bet that it's half gone again with the next gain, so we don't average out all that well. She's still following the curve rather than dropping, but it's slow going and she's still way below the charts. It's also incredibly exhausting to get her eating consistently every day. Some days we just don't have the energy and she spends most of the day snacking on cashews and biscuits.
    Talia Grace -born at 27w4d, 700g, due to placenta previa and IUGR 13/7/07
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  9. #9
    Chatterbox Miss Lilys Mumma's Avatar
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    Re: Sustagen vs Milk Powder?

    Thanks for all the replies Lots of questions so I hope I don't forget any.

    L has a medical condition similar to diabetes, so it is important that we don't just go nuts and increase her protein and not her calories as such.
    Although she follows a curve (10th centile) her BMI is decreasing (it is currently negative 0.7).
    She has been wearing a spinal brace for 3 months now and one of her specialists believes that if she can increase her muscle mass then that will help her scoliosis.

    Our dieitician is wonderful, we have been trying to get L to eat a high protein diet but she refuses to (if it's not rice, pasta or bread good luck!) our dietician knows how much I struggle to make "every bite count", it is more a specialist asking me to get L to gain the weight (I really think the specialist thinks I am starving L, I have even suggested they admit her for a few days to see how little she really eats). But she is so fussy, she refuses so many types of foods and would rather starve than eat most of the food we offer her (even McDonalds and the usual meals toddlers would tantrum to get).

    She currently weighs 12.5kgs and is 3.5yo. (Same weight as my 24 month old)
    Cheers
    Miss Lilys Mumma

  10. #10
    Where is my medal! EmJay's Avatar
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    Re: Sustagen vs Milk Powder?

    Poor darling to have scoliosis. Do you think she'll need surgery eventually? My brother had the surgery in his late teens I think..or early 20's.

    Makes sense what they are suggesting..but if only they realised how difficult it was to get our darlings to do what they need to do

    How on earth would you calculate a child's BMI? Same as an adults? Have no idea what Charlie would be.
    Mummy to Charlie (my ex prem now 6) and Lizzie (4)
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  11. #11
    Where is my medal! Le Bec's Avatar
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    Re: Sustagen vs Milk Powder?

    Quote Originally Posted by Miss Lilys Mumma
    But she is so fussy, she refuses so many types of foods and would rather starve than eat most of the food we offer her (even McDonalds and the usual meals toddlers would tantrum to get).
    Erin's exactly the same! I never thought I'd be a mum who had to bribe her kid with chips to get to eat a cheeseburger.
    Updates from hospital on Twitter

    Kyla (Shimmer) is my PIG - don't harass her too much

    Bad Mummy
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    Abigail Clara, born at term weighing 2870grams

  12. #12
    It's official! I have no life! rhonda's Avatar
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    Re: Sustagen vs Milk Powder?

    If L eats pasta and you need to build up the protein for muscles, can you make egg pasta? Would the protein in the eggs be helpful? And if she eats rice, will she eat a rice custard loaded with egg yolk?

    I've resorted to Rachel's 2 favourite food groups - cake and ice cream. So for us it is lots of creative muffin cakes, or anything I can hide in an ice cream mould (frozen egg custard ice cream, creamed corn and mashed peas, pureed fruit and home-made yoghurt bolstered with vanilla pediasure)

    sorry - I know how frustrating it is to get co-operation out of a toddler (Rachel used to be good at eating, but not so much now ) and you have probably tried everything and could write a book on suggestions.
    She'll do it in her own time. Rachel was born @ 24 + 2 weeks, 669gms


    all my little angels fill heaven with joy and laughter

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  13. #13
    Forum Junkie chelseasmum's Avatar
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    Re: Sustagen vs Milk Powder?

    i have no idea,we have always done either pediasure, nutrini or cows milk with toddler formula,to which all fail us now chelsea has droped to 11.3kg at 38 months. i dnt no if u want to but u could call nutricia homeward hens on 1800884 367 and c if they have an info list on al there products to c which one could help lilly

  14. #14
    Where is my medal! Le Bec's Avatar
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    Re: Sustagen vs Milk Powder?

    Sorry, I meant to mention this yesterday. You shouldn't have trouble with increasing protein without increasing calories. The protein powder we've used has some nice calories in it too.
    Updates from hospital on Twitter

    Kyla (Shimmer) is my PIG - don't harass her too much

    Bad Mummy
    Mum to
    Erin Rose, born at 26+3 weighing 428grams - now three and feisty!
    Abigail Clara, born at term weighing 2870grams

  15. #15
    Chatterbox Miss Lilys Mumma's Avatar
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    Re: Sustagen vs Milk Powder?

    Thanks everyone

    We are hoping by starting the brace this early we will avoid surgery, it is hard to know what is going to happen. We are just trusting in what our ortho tells us to do.

    She won't eat egg, well not very often. I can sometimes get her to eat something by hiding it in a pasta casing, similar to agnolotti and at least when I make that pasta I make it with eggs.

    The calc for BMI is the same as an adult as far as I know but I don't know how they came up with a negative score for her...

    I have had some success mixing the protein powder into foods like yoghurt, weetabix and the like...guess I'll just keep doing my best!
    Cheers
    Miss Lilys Mumma

  16. #16
    Where is my medal! Le Bec's Avatar
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    Re: Sustagen vs Milk Powder?

    That's really all you can do. I really hope she starts having some gains for you, let us know how you go
    Updates from hospital on Twitter

    Kyla (Shimmer) is my PIG - don't harass her too much

    Bad Mummy
    Mum to
    Erin Rose, born at 26+3 weighing 428grams - now three and feisty!
    Abigail Clara, born at term weighing 2870grams

  17. #17
    Where is my medal! EmJay's Avatar
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    Re: Sustagen vs Milk Powder?

    I googled a bit last night...I think the negative value is from them calcuting a BMI
    'z' value..because when I did Charlie's it was also negative, but done normally it wasn't.

    Wishing you all the best...if you have success let us know...as you know there's a whole bunch of us who want the secret
    Mummy to Charlie (my ex prem now 6) and Lizzie (4)
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  18. #18
    Chatterbox Miss Lilys Mumma's Avatar
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    Re: Sustagen vs Milk Powder?

    Thanks everyone. I see the dietician and the paed on the 23rd so will let you know how I go.
    Cheers
    Miss Lilys Mumma

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